So, I would like to contribute my own positive health care story. Some of you may know that my daughter was diagnosed with a relatively rare heart problem at seven weeks old (and she was born seven and a half weeks early, so before her original due date). We were immediately swept into the unknown-to-us world of pediatric medicine and I must say that our experience has been pretty positive with only a few exceptions over the course of the last four years. We were lucky enough to get referred to Lucile Packard Children's Hospital at Stanford early on in her diagnosis and we have worked with some of the most wonderful doctors and nurses in the nation because of that.
I don't have a lot to which to compare my experience, since we were have not spent time at any other children's hospitals. But, I will say that being at a teaching hospital has truly spoiled me. When I go to medical appointments with my mom at her hospital (a non-teaching hospital), I feel the lack of diversity of opinion (at LPCH, there is always a team working with your child - the team is mostly made up of medical residents or fellows and sometimes even medical students, but knowing that there are multiple opinions and multiple checks really makes me feel better) and the lack of patient engagement (one of the overarching foundations of care at LPCH is family-centered care - since my daughter is young, that meant them asking me questions about her and getting my opinions on what was going on - I always feel included in my daughter's diagnosis and care - sometimes to the point of exhaustion when I have repeated the same information five or six times to different medical personnel). I know that it is impossible to foster this type of care at all medical facilities, but I can say that having access to a medical teaching facility is truly something that can change your perspective on the health care system.
The other thing I would say about my experience with the health care system has been an incredibly positive experience with our health insurance provider, Blue Shield of CA. I have heard horror stories from other families about fighting with their insurers, getting huge bills that have to be negotiated, having huge debts from transplant experiences. We have had none of that. We were refused an RSV shot at one point, but appealed and got it reinstated. I had one bill that was mislabeled for my daughter's original ambulance transport that took a few phone calls back and forth to get handled. I was sent one bill in the mail while it was being negotiated (and almost passed out when I saw how much it was for), but was never contacted beyond that. Other than that, I have never had anyone question coverage for any item - and she has had more than her share of medical procedures, therapy, etc. over the last four years. I don't know if this is typical for Blue Shield of CA or a reflection of our hospital billers being good at their jobs, but either way, it has been an incredibly positive experience. The only bad thing is it makes me very, very scared to change or lose my job because I don't ever want to lose this health insurance!
My daughter is doing well. We have had some bumps along the road to be sure. But, over all, I always feel secure in the fact that she is getting the absolute best care at LPCH. I also feel that I have been treated with respect and compassion throughout the experience, something that means a ton in a situation like this. I wish that everyone could have such positive health care experiences and I guess that is one reason why I am so interested in health communication and patient advocacy. There are places and people out there who are doing amazing things and I want individuals to be able to find those places and people and have successful health care and successful relationships with their health care providers.
So, there it is - my positive health care story! I encourage others who have had positive stories to share theirs as well. I think KevinMD is correct - the medical system is taking a bashing in the mainstream media, but we can rally online media and show that there are a lot of very positive stories out there and hopefully through that, figure out a way to turn around the negatives that do exist and are often highlighted.